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The HPCA was founded in to address the needs of individual hospices and provincial associations to have a united, national body who would advocate for palliative care in South Africa and internationally, build on hospice resources and skills to provide effective, supportive care to communities in need.
HPCA is a national organisation with members operating in nine provinces and 51 health districts. It has service sites where care and support is provided for close to patients per year of whom 97 percent are cared for at home.
The organisation has a development team in each province which is made up of two palliative care development officers and a monitoring and evaluation officer. These teams are headed by a regional manager. The World Health Organisation WHO defines palliative care as an approach that improves the quality of life of patients and their families facing problems associated with life-threatening illness, through the prevention and relief of suffering, the early identification and impeccable Grief and loss in correctional facilities and treatment of pain and other problems, physical, psychosocial and spiritual.
The definition goes on to elaborate on some key issues including the fact that palliative care will enhance the quality of life, and will positively influence the course of illness and is applicable early in the course of illness, in conjunction with other therapies that are implemented to prolong life or cure the illness.
To promote quality in life, dignity in death and support in bereavement to all persons living with a life-threatening illness by supporting member and partner organisations. To work with hospices and provincial associations towards the realisation of a common vision of quality palliative care for all; Integrate palliative care into all healthcare settings; Maximise the reach of palliative care training; Improve awareness and recognition of palliative care; Develop and improve funding strategy and sustainability of palliative care services; Develop and implement HPCA transformation strategy; Strengthen and maintain organisational capacity and sustainability of HPCA.
Main activities and services Assistance to nonprofit NPOs and other facilities in organisation development, personnel development, Governance structures and development of specific services such as palliative care, TB care and orphaned and vulnerable children OVC care; Assessing organisational capacity using the HPCA Organisation Capacity Assessment OCA tool and drawing up of an organisational development plan to address capacity needs identified in the assessment; Mentorship, training and coaching to assist organisational development according to development plans.
Palliative care is a holistic, patient centred approach which includes the quality of life for all patients and their families from the moment of diagnosis of a life threatening illness. Because palliative care is a holistic approach, HPCA is faced with overwhelming needs of patients and their families which include abject poverty, poor nutrition, family breakdown, vulnerable children, deep rural conditions, high exposure to TB, abuse, violence, complicated grief in families and a sense of helplessness.
To improve the quality of life for patients and their families, these needs need to be addressed to empower the family to cope with the life threatening condition effectively. Poor resources and lack of referral structures make this very difficult.
Many patients diagnosed with life threatening illnesses experience severe pain and distressing symptoms which are not controlled. HPCA strives for the recognition of pain and symptom relief as a basic human right for everyone.
Impact Through continuous effort and determination, HPCA is pleased to see the inclusion of palliative care in national plans such as the NSP and some provincial plans.
HPCA has also seen palliative care recognised as a care and support programme essential to assisting patients diagnosed with HIV, TB and non-communicable diseases.
More professionals are being trained in palliative care and it is included in the family medicine curriculum for doctors. HPCA member organisations provide palliative care services to approximately 50 patients and their families per month.
Together it can be ensured that all South Africans diagnosed with a life threatening illness are cared for in a holistic manner which addresses their physical, psychosocial and spiritual needs.Prevalence of Grief in Correctional Facilities The research that is accessible on grief and loss for incarcerated individuals in limited within the United States; however, many studies have been published in Europe, Australia and New Zealand.
DYING, SURVIVING, OR AGING WITH GRACE Not necessarily in that order Resources on illness, death and dying, loss, grief, and positive aging. Welcome to Crisis Help Network: Melbourne. Click on the topics below for helpful information compiled by former homeless people.
This resource is updated and maintained by people who are, or have been in crisis or homeless and whose experiences are invaluable to the worth of this resource. Coping with Grief and Loss. Grieving can be a long process and it takes on many different forms.
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